More about Action for A-T

Action for A-T was established to speed up the process of trying to identify a cure for Ataxia-Telangiectasia (A-T) or treatments that delay the disabling effects of this childhood disease. A-T is a rare neurodegenerative and progressive condition which starts in early childhood causing severe disability and premature death. There is currently no cure for the condition and nothing that can halt its progression. Babies are born ‘normal’ and then slowly, from around the age of 5, start to lose their independence. A wheelchair is needed usually by the age of ten, if not before, and in many cases, a feeding tube by the age of 12. Children with this brutal disease often do not live beyond their teens. Funding for research into the condition is very limited so Action for A-T has been set up to raise funds that can be put into medical research. Your support of this very worthwhile cause would be really appreciated and could make a real difference to the lives of children with the condition.