Longton, Stoke-on-Trent
£91.37 raised
8 supporters
The Dylans Trust has been set up for our Wonderful Son, Dylan Dylan was diagnosed with a Congenital Muscular Dystrophy, in October 2005. The CMD that Dylan has is Ullrich Congenital Muscular Dystrophy. This is a disabling, progressive and life limiting disease for which there is no known cure, yet. With the help of this website and through fundraising efforts, we aim to increase awareness of Dylans condition, and raise money in an effort to provide him with the best quality of life that he can have. We are in the process of trying to raise £48,000, so that we can extend our house to incorporate a bedroom and "wetroom" for Dylan. There is a lot of essential specialist equipment that for both in and out of the home, that will help Dylan. Our intention then is to continue raising both funds and awareness that will benefit the research into the condition.
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