Earley, Reading
£3,232.04 raised
147 supporters
The Ichthyosis Support Group (ISG) is a small charity run mostly by volunteers affected by ichthyosis for ichthyosis sufferers and their families. Ichthyosis is the term for severe, persistent scaly skin that usually starts at birth or infancy. and persists throughout life. There is no cure and treatment is daily often several times a day. In severe cases the condition can be fatal, especially in infants. The ISG provides a network of support and information for this rare condition.
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