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About our cause

The Ichthyosis Support Group is a small charity run by volunteers from families affected by ichthyosis for ichthyosis sufferers and their families. Ichthyosis is the term for severe, persistent dry skin that almost always starts in childhood or infancy. Under normal circumstances, the body continuously renews its skin surface, building new skin cells and allowing older cells to be shed from the surface. Ichthyosis disrupts this balance either because too many replacement skin cells are produced or because the skin cells do not separate well from the skin surface when it is their time to drop off. The result is that skin cells accumulate into thick flakes that adhere to the body and can resemble fish scales. Rare forms of ichthyosis can be life threatening, even in infancy, if skin problems are severe.