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Myotubular myopathy is a rare muscle condition which affects mostly boys at birth, and sometimes an even rarer form develops later in life affecting both boys and girls. It causes profound muscle weakness. Most critically it affects the muscles that control breathing and swallowing and is a constant threat to life - even a simple cold could prove fatal. Sadly many do not survive their first year of life*. Like all rare diseases it is very difficult to attract research funding for myotubular myopathy, despite the severity of its impact on the children affected. The Myotubular Trust has been set up to raise funds and begin the process of finding a cure. The Myotubular Trust constantly aims for 100% of all funds raised by our supporters to go directly towards research, to help find a cure or treatment for children with myotubular myopathy**.*Source: Orphanet Journal of Rare Diseases. Centronuclear (myotubular) myopathy** Achieved every year to date and to latest accounts at 31 December 2012.
It's simple to use and it's free. Since we launched in 2005, we've helped thousands of good causes raise money simply by shopping online. Our community of over 1.8 million loyal supporters has so far raised over £31 million.
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easyfundraising turns your everyday online shopping into free donations for your favourite cause.
How? Just start your online shopping first at easyfundraising, then shop as normal.
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We have 4,063 retailers to choose from and so far we've raised over £31 million for thousands of community groups, schools, sports clubs, small and large charities across the UK. Easy!
Kim Cowling - 1st and 3rd Kilmacolm Guides
easyfundraising has been great for us and so easy to use. Imagine being given free money just for online shopping! Since joining we have raised over £2,200.
Over £31 million raised
1.8 million supporters
140,000 good causes
Over 4,000 shops