Its a very rare condition which my daughter has just been diagnosed with its extramly painfull and its to do which the veins there is struggle with poeple abroad with this condition i have met 3 poeple in the usa who has gvms and is currently struggling to get treatment for their childre  because its so rare the doctors dont have that much information on tbis condition great ormond st so far has the best knowledge and treatment they could offer them.

GVMS Kids - Chelsea Simmonds

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