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We have set up ‘Dee trust’ in memory of our son, to raise money to provide awareness and help contribute towards more research into Neuroblastoma, a childhood cancer. We decided to put this ‘trust’ together during the weeks following his passing on 5th May 2012. The process of achieving this has helped to provide some comfort and achieve something positive, which allows Dee’s memory to live on. Devante Uriah Andre Beckford was born on 29th May 2000 @ 10.47pm weighing 5.12oz @ Birmingham Women’s Hospital. He was a healthy, lively bundle of joy. I cannot recall the exact date but around Christmas 2010 Dee started complaining about pains in his legs, as the simple task of walking up and down the stairs was becoming unbearable. I noticed, Dee no longer seemed interested and started to feel tired a lot, especially after school. I took him to see our GP who indicated that it was probably growing pains as he was a tall lad for his age. She referred him to hospital for an x-ray but nothing was found. As weeks went on Dee continued to complain and by now he was finding it difficult to ride his bike to and from school. One night he was crying with pain. I knew something was wrong so I drove him to Heartlands Accident and Emergency, in Birmingham. Throughout the night we waited, Dee couldn’t sleep or even lie down as he couldn’t get comfortable. He was x-rayed, seen by a bone specialist and nothing was found. However, I refused {call it a mothers intuition} and a concerned nurse who had seen us when we first arrived suggested that a urine test be done. The results came back confirming that Dee had cancer. Being told this was too overwhelming, I was shocked with disbelief, and confused as there was a lot to take in. Dee was transferred to Birmingham Children’s Hospital where they carried out tests, scans and investigations to find out exactly what type of cancer he had and if it had spread within his body. On the 23rd April it was confirmed as Neuroblastoma and we had the heartbreaking task of discussing it with Dee. We discussed what we were going to have to face in the near future and although for many this would have been daunting situation, Dees outlook on life was always optimistic and he became a much stronger and positive person as his only response was ‘cancer can be cured.’Whilst in hospital he was often tired and weak from the treatment and therefore spent most of his time lying flat on his back in bed. His favourite part of the ward was the Teenager Cancer Trust (TCT) as it was designed for older children and although it was for ages 13+ the staff would accommodate him so he would have some peace and quiet away from the noise of younger patients. His philosophy, ‘Why live a little when you can live a lot`. RIP Devante 05/10/12

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