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About this cause

About our cause

At 4 weeks old Esmae was diagnosed with cystic fibrosis. Cystic fibrosis is an autosomal recessive genetic disorder that affects most critically the lungs, and also the pancreas, liver, and intestine. It is characterized by abnormal transport of chloride and sodium across an epithelium, leading to thick, viscous secretions. Difficulty breathing is the most serious symptom and results from frequent lung infections that are treated with antibiotics and other medications. Other symptoms—including sinus infections, poor growth, and infertility—affect other parts of the body. A person with cystic fibrsios life expecting is the age of 37 to help make a person life easy they have to take medication every day and do physio. Esmae is in and out of hospital and as to have 5 lots of medication in a morning and one on a night she also as to take a medication with every food she eats she also as to have physio up to 4 times a day. As Esmae is 7 months old she loves to get around and as you can imagine keeping a curious baby still while trying to have physio is very hard but doing physio is just as important as taking her medication as it helps clear the mucus of her lungs with then help's her to breathe and also prevents infection to the lungs. There is a physio vest that can help Esmae with her physio it help gets in all the right place.. It vibrates Esmae lungs to get the mucus of. The vest cost £7000 pounds so I am trying to raise money so I can get this vest to help make my 7 month old daughter Life that bit easier! Learning that your daughter as got a long term illness is one of the hardest thing a parent can go though, I will do anything I can to help my daughter's way of life easy and hope in time to come there will be a cure! Please help!

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