Our son Joshua Burns Adair, he was born with Jeuneâ€™s Thoracic Dystrophy, a very rare form of dwarfism that affects his rib cage which is bell shaped and is now slowly crushing him to death. We are trying to get him to America where they have agreed to help with an operation called VEPTR. You can find out more about Joshua's plight and all we have been trying to do if you google his full name. 

CHOP 2018 - Joshua Burns Adair

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