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Lilly Mae skidmore is my amazing brave daughter who sufferers from koolen de-vries syndrome, epilepsy, is going blind, has autism, hypertonic, hyper mobility, GDD and much more , she's 9 years old & always brave & I couldn't be prouder but due to her conditions there's so much she needs that we just can't afford since I basically gave up my career to care for her so every penny raise will go to all she needs that's not available on the nhs, be that prescription sunglasses, prescription swimming goggles, Incontinence products, extra therapy or as we're currently saving for- a koolen de vries conference weekend where we'd be able to meet with all professionals involved in the condition including the doctors who discovered it, so in brief every penny we can raise will help massively and go a long way!!
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