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Morgan and James - TTTS Survivors

Chester, Cheshire

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2 supporters

About Morgan and James - TTTS Survivors

Morgan and James Pomeroy, identical twins, were born on 20 September 2004 at 29 weeks 4 days gestation, having been diagnosed with twin to twin transfusion syndrome.Morgan sustained brain damage and was very seriously ill shortly after birth and now suffers from microcephaly and quadriplegic spastic cerebral palsy. He is fed almost exclusively via a gastrostomy. Morgan also suffers from epilepsy. James\' post-delivery problems began with necrotising enterocolitis (\'NEC\'). He had various complications with his lungs, liver and intestines, and has been on the brink of death several times. In April 2005 we even discussed turning off his life support. Thankfully he survived, and after spending the first 13 months of his life in hospital, he finally came home on 19 October 2005. He lost a key window for learning to feed and had a gastrostomy for a while, but now feeds normally. James suffers from a milder form of epilepsy than Morgan, which is stable under medicinal control. His development is significantly delayed and we do not really know how he will progress educationally. The expenses of severely disabled children and those with special needs are many. Many toys, for example, are easily ten times as expensive. EasyFundraising helps us with some of those expenses.

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