Support My CF warrior Savannah - Lianne Wenzel

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Support My CF warrior Savannah - Lianne Wenzel

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What Is Cystic Fibrosis? Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. In people with CF, mutations in the cystic fibrosis transmembrane conductance regulator (CFTR) gene cause the CFTR protein to become dysfunctional. When the protein is not working correctly, it’s unable to help move chloride -- a component of salt -- to the cell surface. Without the chloride to attract water to the cell surface, the mucus in various organs becomes thick and sticky. In the lungs, the mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, respiratory failure, and other complications. For this reason, minimizing contact with germs is a top concern for people with CF.In the pancreas, the buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth. In the liver, the thick mucus can block the bile duct, causing liver disease. In men, CF can affect their ability to have children. Symptoms of CFPeople with CF can have a variety of symptoms, including: Very salty-tasting skin. Persistent coughing, at times with phlegm. Frequent lung infections including pneumonia or bronchitis. Wheezing or shortness of breath. Poor growth or weight gain in spite of a good appetite. Frequent greasy, bulky stools or difficulty with bowel movements. Our daughter was diagnosed at 21 days old with a call from the hospital asking us to be there within the hour to be met with a room full of specialists to be told our new baby had the life limiting disease cystic fibrosis. The day we will never forget Please help us make cf stand for cure found

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Kim Cowling - 1st and 3rd Kilmacolm Guides

Kim Cowling - 1st and 3rd Kilmacolm Guides

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