PAWS-GIST (An Initiative of GIST Support UK)


There are some sub-variants of GIST cancer which are extremely rare and which we have grouped together as PAWS GIST. These are: Paediatric/Adolescent Wild-Type Syndromic (Carney's Triad and Carney-Stratakis Syndrome) PAWS GIST (an initiative of GIST Support UK) was started in November 2010. It is a specialist focus group of parents of young patients, and their doctors. Working in partnership with experts in America and Europe we aim to improve treatment & ultimately find a cure for PAWS-GIST

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