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PseudoXanthoma Elasticum Support Group - PiXiE

Marlow, Buckinghamshire

£47.84 raised

33 supporters

About PseudoXanthoma Elasticum Support Group - PiXiE

PXE is a rare genetic disorder which affects the skin and robs over 60% of sufferers of their central vision. We can also suffer from gastrointestinal bleeds and calcified arteries. It affects approx 1 in 50,000. We provide support and counseling to patients and provide advice to patients and the medical profession. We also aim to educate as many of the public and medical community as possible. We were the 1st PXE support group in the World in yet we have no funding, nor sponsors and have to survive on membership subs and donations. Therefore any help you can give would be much appreciated. Please see www.pxe.org.uk for more details.

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