Support PMSF UK - Phelan-McDermid Syndrome Foundation

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Support PMSF UK - Phelan-McDermid Syndrome Foundation

£623.93

Total raised

39

Supporters

About this cause

About our cause

There are just over 130 people who are diagnosed with Phelan-McDermid Syndrome (PMS) in the UK & Ireland, and approximately 1,500 worldwide. All people with PMS have difficulty communicating (many are non-verbal) and most have low tone in their limbs. All people diagnosed with PMS need additional care to support their daily lives. The Phelan-McDermid Syndrome Foundation UK (PMSF UK) is a registered charity in the United Kingdom. PMSF UK is about providing a supportive inclusive community for those who have or know someone with PMS. We can provide family days and get-togethers and some limited support for additional therapies for the person with PMS (two awards given annually). There is easy access to an informative website about Phelan-McDermid Syndrome, and we can put you in touch with local families who have a member with PMS. If you are shopping online this is an easy way to donate to PMSF UK and then you are also a part of this community. Thank you for supporting PMSF UK.

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Kim Cowling - 1st and 3rd Kilmacolm Guides

Kim Cowling - 1st and 3rd Kilmacolm Guides

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